Showing posts with label aching and fatigue. Show all posts
Showing posts with label aching and fatigue. Show all posts

Wednesday, April 4, 2012

Amitriptyline is Kicking My Butt!


I've been taking 100mg Amitriptyline for three days now and I and I feel like I've been living in a dense fog - denser than usual I should say.  I'm so tired and zoned out, I can hardly do anything.  The prescription is for 150mg per day so as soon as I feel more normal, I'll have to bump it up even more, which I can't say I'm looking forward to.  I've been off Zoloft for three days, so tonight I'm going to take the first dose of Savella from the titration pack.  I have a feeling this week is going to be difficult until I've adjusted to the new medications.  I've been having problems sleeping again complete with nightmares and disturbing dreams.  The body pain and muscle weakness haven't gotten any better either.  I really am tired of this medication cha-cha, withdrawal symptoms while going off, side effects of the new meds.

Wow - I'm just full of positive words today!

Saturday, March 31, 2012

Zoloft for Fibromyalgia Pain?

Fibromyalgia Trigger Points

As I posted Tuesday, I've been titrating off Zoloft and replacing it with Amitriptylene so I'm able to take the Fibromyalgia drug Savella.  According to drug interaction information, Savella should not be taken with an SSRI so this change, as inconvenient as it is, was necessary.

Late last year, while conducting yet another of my countless experiments with regards to curing this dismal disease, I also weaned myself off Zoloft (as well as all other medications) in order to follow the Alpha Nutrition Diet for Aching and fatigue (original post).  I noticed when I was completely off Zoloft, that some of my symptoms, which had been absent for some time, returned.  I started again to feel as though I had the flu.  I felt feverish, sweaty and my entire body ached as one does when afflicted with a high fever.  I attributed it, simply, as another phase of the ever changing disease, however, I did make a mental note that the symptoms had appeared almost exactly to the day that I stopped taking Zoloft.

I hadn't read anywhere that Zoloft was being used as a treatment for Fibromyalgia or ME/CFS so I didn't put much stock in the idea that the timing was significant.  The flu-like symptoms did go away, though I can't remember the relationship with when I began taking Zoloft again.

Last night my two year old daughter had one of her infamous sleepless nights which, of course, meant I got very little sleep as well.  Anyone who has Fibromyalgia or ME/CFS knows that lack of sleep is a killer.  Last night, as I lay next to my daughter in her small bed, afraid to move a muscle or even breathe too deeply for fear she would awake, I felt my leg muscles begin to throb and ache, then, the pain slowly spread throughout my entire body all the way to my finger tips.  In what seemed like minutes from when my body started aching, I felt sweat begin to form on my upper lip and the fever-like chills began.  I thought,  "Oh shit!  It's back!".  I'd been fortunate to be rid of these flu-like symptoms for some time and it hardly seemed coincidental that I had taken my last Zoloft two nights before.

I've discovered through reading others' experiences, that treatments for both ME/CFS and Fibromyalgia vary greatly from patient to patient.  One of the strangest and most baffling things about these diseases is the drastically different ways they effect each sufferer and therefore, the methods of treatment that are used.  Zoloft!  Who knew?  If my experiment with Savella doesn't pan out, I'll be going back on Zoloft for sure!  If I can't be completely cured, at least I know some of my symptoms can be relieved.

Friday, February 10, 2012

My Messy Apartment is Driving Me INSANE!

Are any other Fibros out there sick and friggin' tired of their homes looking like pig sties?  Unless you are fortunate enough to have a husband/wife/roommate who cleans, you probably have an abode that looks something like mine.  Laundry piles up, dishes pile up, dust piles up, etc, etc.  Sometimes when I roll out of bed and walk into my living room I want to cry.  The floor hasn't been vacuumed in weeks, there are toys scattered all over the floor and overdue bills and other neglected paperwork piled on practically every surface.  I can't lift the full laundry basket so I have to wait till my husband is around or make several trips to the washing machine with small arm-fulls.  By the time I've done that, I'm spent.  On a good day I can recuperate for an hour or so and continue with chores.  On a bad day, that may be all I get done.  I may not even get the clothes from the washer to the dryer.

I know other ME/CFS/Fibromyalgia sufferers can understand how incredibly frustrating this is.  I was never a neat freak by any means, but a messy home gives me so much stress and I don't think the excess dust does me any good either.  If I had the money, I'd certainly hire a cleaning person once a week or so but since I can no longer work, that's out of the question.  I just have to do what I can and put blinders on for the rest, although that's a whole lot easier said than done.

Saturday, November 5, 2011

Can hardly lift my arm. So scared

Still in bed. Don't have strength to lift my head from the pillow. Sorry about the fragmented sentences. Typing this on my iPhone with only one eye opened. Can type a couple words then have to close my eye and rest again. Eye lids are so heavy I can only hold them open for a minute or so, then they close.

My husband is in the other room. Must think I'm just sleeping late. I'll have to text him since I can't call out to him. I feel like I must be dying. Would be a relief from this - whatever it is that's slowly rotting my body.

As I lay here in pain and profound weakness I hear the joyful cheers of spectators outside my window as athletes in a triathlon victoriously cross the finish line. Oh my god.

Falling Further Down the Black Hole

My depression has reached a critical level. I don't give a crap anymore about trying a new diet, medication or anything for that matter. I haven't felt this low in a very long time. I physically feel terrible and there isn't much left in my life I have control over. I'm blessed to have a wonderful therapist who I've been keeping in regular contact with and who is closely monitoring my situation. I'm still taking about 10mg of Cymbalta per day and can't seem to lower he dose much more without suffering withdrawal.

I made the decision today that I will no longer be able to fulfill my responsibilities as manager here at the hotel. My cognitive impairment has gotten worse and worse. I spent quite a bit of time today on the phone apologizing to guests who apparently had made reservations but that I had no recollection of, or paper work on. I'm not used to making so many mistakes. I have often, in the past, held positions which required serious detail orientation, commitment and work ethic and are qualities I have always prided myself on. I guess those days are gone and hopefully only temporarily.

My marriage is seriously on the rocks and shows no sign of getting better. Now I'll be almost completely financially dependent on my husband and just the thought seems to choke off my air. My almost stubborn self-sufficiency is something I have also had pride in. There are some people I wouldn't mind having to depend on but my husband isn't one of them. I know he'll rub my face in it and it'll become a game of trade-offs. He pays for stuff so I'll have to do things for him in return. It's already that way to a large extent and will only get worse.

So, I'm not able to take care of my daughter, I'm not able to do my job and I'm not able to do things that need to be done to upkeep our home. What can I do? Not much.

I have yet to call the owners of the hotel to tell them I'll have to take a medical leave. That's going to be yet another humbling experience that I think I'll save for tomorrow.

Friday, October 21, 2011

Day 2 - 10/20/11 - Alpha Nutrition Diet for Aching and Fatigue

Still feeling about the same or worse.

Symptoms (0=mild to no discomfort 10=most severe discomfort/ pain)
10:00am
Shortness of Breath - 5
Fatigue - 7
Headache - 0
Backache - 5
Heart Murmurs - 5
Eye Pain - 2
All-Over Body Pain - 4
Sore Throat - 3

Food Log
8:30am -  1/2 cup rice cereal, 1/2 cup rice milk, 1/3 cup ENF formula
9:30am - 4 peach slices
11:00am - 1 cup broccoli & carrots, 1 cup rice
4:00pm - 1 cup rice, 1 cup broccoli & carrots
6:00pm - 1 cup rice, 1 cup broccoli & carrots
8:00pm - 1 cup rice cereal, 1 cup rice milk
9:00pm - 8 peach slices

Medications taken at bedtime:
Cymbalta: 20mg, Welbutrin: 150mg, Lorazepam: 2mg

Thursday, October 20, 2011

Day 1 - 10/19/11 - Alpha Nutrition Diet for Aching and Fatigue

Slept until around 10am.  Woke up feeling bad:

Symptoms (0=mild to no discomfort 10=most severe discomfort/ pain)
                        12:00pm |  5:00pm
Shortness of Breath - 4  |  4
Fatigue - 6  |  6
Headache - 2  |  0
Backache - 6  |  3
Heart Murmurs - 5  |5
Eye Pain - 3  |  3
All-Over Body Pain - 4  |  4
Joint Pain - 5  |  4

Food Log
11:30am  -  6 peach slices, 3/4 cup white rice
12:30pm  -  1 cup cooked broccoli & carrots, 1tbsp olive oil, 1tsp salt
1:00pm  -  1 baked sweet potato
3:00pm  -  1 cup rice cereal, 1/2 cup rice milk
5:00pm  -  6 peach slices, 1/3 cup ENF formula
6:00pm  -  1 cup rice, 1 cup broccoli & carrots
7:30pm  -  1 cup rice cereal, 1 cup rice milk
9:00pm  -  1 cup rice

Medications taken at bedtime:
Cymbalta: 20mg, Welbutrin: 150mg, Lorazepam: 2mg