Still in bed. Don't have strength to lift my head from the pillow. Sorry about the fragmented sentences. Typing this on my iPhone with only one eye opened. Can type a couple words then have to close my eye and rest again. Eye lids are so heavy I can only hold them open for a minute or so, then they close.
My husband is in the other room. Must think I'm just sleeping late. I'll have to text him since I can't call out to him. I feel like I must be dying. Would be a relief from this - whatever it is that's slowly rotting my body.
As I lay here in pain and profound weakness I hear the joyful cheers of spectators outside my window as athletes in a triathlon victoriously cross the finish line. Oh my god.
This is the story of my very frustrating journey through the debilitating and mind-boggling world of Fibromyalgia, ME/CFS, Autoimmune Disease, Depression and more.
2 comments:
That sounds more like chronic fatigue syndrome. Do you have a rheumatologist?
Thanks so much for your comment! You are SPOT ON!! I was diagnosed with Chronic Fatigue in addition to the Fibromyalgia about a year ago. I had a rheumatologist who was horrible. I ended up doing my own research and with the help of my very open-minded GP, have been in remission for six, wonderful months. My silver bullet is 150mg Amitriptyline, and 1.5mg Lorazepam per day. If I miss a dose, I'm right back where I was though, that's why I call it remission. It's all so bizarre!! Are you a Chronic Fatigue sufferer as well?
Post a Comment